Patient Organization
Narcolepsy Network
Narcolepsy Network is a long-standing patient organization dedicated to improving the lives of individuals with narcolepsy and idiopathic hypersomnia (IH). It was established in 1986
The Lullaby Trust
The Lullaby Trust is a charity, entirely reliant on voluntary donations, that aims to save babies’ lives and support bereaved families. Around three babies a
Sleep Disorders Australia
Sleep Disorders Australia (SDA) is a voluntary not-for-profit health promotion charity that advocates for the needs of people with sleep disorders and raises awareness of
Uplifting Athletes
From competing as an elite athlete to becoming Executive Director of Uplifting Athletes, Rob Long has had an incredible journey, granting him insight into rare
Circadian Sleep Disorders Network
Circadian Sleep Disorders Network (CSDN) is an independent nonprofit organization dedicated to improving the lives of people with chronic circadian sleep rhythm disorders. Circadian sleep
Patient Organization Highlight: Sleep Consortium
Founded in 2021, Sleep Consortium is a nonprofit organization created to accelerate next-generation research, disease understanding, and therapy development for those living with central disorders
Patient Organization Highlight- Restless Legs Syndrome Foundation
The Restless Legs Syndrome Foundation is a nonprofit 501(c)(3) organization dedicated to improving the lives of men, women, and children who live with this often-devastating
Wake Up Narcolepsy
Founded in 2008, Wake Up Narcolepsy, Inc. (WUN) is a nonprofit, patient advocacy organization dedicated to driving narcolepsy awareness, education, and research towards improved
Project Sleep
Founded in 2013, Project Sleep is a nonprofit organization that aims to bridge the gap between sleep health and sleep disorders while bringing a patient-driven
The Hypersomnia Foundation
Patient Organization Highlight The Hypersomnia Foundation, Inc. is a nonprofit, patient advocacy organization working on behalf of people with idiopathic hypersomnia and related rare sleep
Day for Narcolepsy Awareness Projects (Day4NAPs)
PATIENT ORGANIZATION HIGHLIGHT DAY4NAPS is a digital database for narcolepsy awareness events occurring on a global scale. Mark Patterson, MD, PhD, President of the organization,
Patient Org Highlight: ASAP
Alliance of Sleep Apnea Partners ASAP is an organization for patients with sleep apnea created by patients with sleep apnea. Kathy Page, Past President of
Patient Organization Highlight: The Snooze Button
The Snooze Button—That’s the name of the podcast, the working title of the book and various other projects connected to the book. The man behind
